For this first post I feel like I should introduce the main character in my life Sage Nasir.
Sage is my 3-year-old son. He was born with gastroschisis. A birth defect that leaves a hole in the right side of the stomach, while he or she is developing in the womb, allowing for internal organs to pass through and develop in the placenta.
From the time I turned 19 weeks pregnant with Sage I was in and out of hospitals. His life has been the greatest adventure of my life. He changed me. Molded me into a different person. I faced a lot of challenges and conquered many fears. I took responsibility to the next level. I learned that having patience is very hard in the fast world we live in today. And, last but not least, i have learned my limits. Sage was my greatest win out of the many battles life has thrown my way.
We went through at least two years of hardship. I was homeless, hungry, and almost never slept. He went through two major surgeries almost dying 3 times. He caught a disease called Necrotizing fasciitis, a flesh-eating disease, that could have made things so much worse for us but I never let things slip. I never missed a day at the hospital and paid attention to every little detail. We had to live on edge for a long time. When ever we made a trip to the hospital I was always prepared to stay. I felt so lucky to have the team at Childrens Hospital of Philadelphia behind me every step of the way. Never losing patience with me and going above and beyond.
Today he is fun, active, and has a very unique personality. He allows me to bring the kid out in myself. He loves science, dinosaurs, and anything with an engine. He loves to run, jump, and play pretend. He has very good manners, knows how to put his own clothes and shoes on, and is so independent sometimes i want to cry. He doesn’t talk very much yet. He can only say a few words. Doctors think he might be autistic, but we are learning sign language very quickly and find it’s very effective in helping us communicate. However, Sage does make a lot of noise. He can mimic almost any sound. He is very clever.
I will be writing a longer more boring post about all the things we went through. Only because I know how I wish I had read about someone else’s experiences with gastroschisis before having to go through it myself alone. I hope that you find my blog entertaining and useful.
When on my blog you can expect random posts of silliness, book reviews, toy reviews, makeup reviews, short fiction stories, updates on my website, stories about Sage of course, and links to websites you might find useful. Follow me on my journey to become a self-taught web developer!
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